By Staff Reporter |

Republican lawmakers pushed for reforms to the state’s disability assessment policies before they took effect this week.

House Majority Whip Julie Willoughby and State Senator Janae Shamp issued a press release on Tuesday raising concerns about the reasonableness and evidence basis for the latest assessment policies from the Arizona Department of Economic Security (DES) and Arizona Health Care Cost Containment System (AHCCCS). 

Per Willoughby and Shamp, coalitions of parents, advocates, and direct care workers reported having little opportunity for meaningful discussion or improvement regarding the new assessment policies, which they described as “extreme and unsustainable.”

Stakeholders allege the new assessment model from DES and AHCCCS will cause bigger burdens for everyone across the board: families, health care providers, and the state. As one example, they argue against the shift of habilitation services to an age basis instead of a skill basis, citing the long-term costs and setbacks from late intervention.

“Lives are at stake, and we must act now to ensure our disability support system functions for the best possible outcomes,” said Shamp. 

The main source of contention concerns rollbacks to a program that paid families to be caregivers to their own children with special needs, the Parents as Paid Caregiver (PPCG) service model. Under the policy changes, children under 10 years old won’t qualify for state-backed attendant care. The changes also implement age limits on habilitation.

“We are urging DES and AHCCCS to pause these harmful changes and sit down with families and providers to develop an approach that works,” said Willoughby and Shamp in a joint statement. “Creating this tool is a huge responsibility, and we need people at the table who have real-life experiences and expertise to ensure the best possible outcomes for our people.”

DES and AHCCCS hosted two public forums earlier this month to review policy updates. Details, including the slideshow and a recording, of that meeting were posted online.

In a joint statement, DES and AHCCCS said the updates were made to address medical necessity and cost effectiveness concerns. 

“AHCCCS revised its assessment tools and service policies in collaboration with Managed Care Organizations, providers and stakeholders. These updates are in response to conditions in the Centers for Medicare and Medicaid Services (CMS) waiver approval and to comply with House Bill 2945, which was signed into law in April 2025, and provided the supplemental funding for DDD. Initial proposed policy and procedural revisions were open for public comment from May 9, 2025 through July 9, 2025.

As a part of the policy changes, AHCCCS also updated the assessment tools used to determine eligibility for medically necessary Home and Community-Based Services (HCBS) for individuals under age 18 enrolled in Arizona Long Term Care System (ALTCS), which includes the Developmental Disabilities (DD) and the Elderly and Physically Disabled (EPD) programs. These tools now include standardized developmental milestone metrics to help case managers and support coordinators assess whether a child’s needs meet the definition of extraordinary care and should be further assessed for certain tasks/supports. This may include changes in the number of service hours children are approved to receive. The new assessment tool will take effect on October 1, 2025, and will be applied during each member’s regularly scheduled quarterly review thereafter.”

A spokeswoman for Governor Katie Hobbs said the policy changes were necessary to ensure the state funded appropriate treatments for children with special needs. Hobbs promised there would be alternatives beyond PPCG for families who relied on that service model. 

“These changes were made to ensure services remain clinically appropriate for children while protecting the long-term viability of critical programs,” said Hobbs press secretary Liliana Soto. “We also recognize the need for additional support beyond these assessed services and our office, in collaboration with AHCCCS and DES, is actively exploring solutions to provide connections for families navigating these transitions.”

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